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MDCRN
Home
GRASP
Network Information
Active Studies
Past Studies
Biorepository
Site and Principal Investigator List
Newsletters
DMCRN
Network Information
Active Studies
Site and Principal Investigator List
Newsletters
Community Engagement
Limb-Girdle Muscular Dystrophy
Patient Education Day
Patient Education Day Information
Patient Education Day Agenda
Patient Day Videos
Conference
Conference Info
Conference Documentation
Conference Videos
Home
Folder: GRASP
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Network Information
Active Studies
Past Studies
Biorepository
Site and Principal Investigator List
Newsletters
Folder: DMCRN
Back
Network Information
Active Studies
Site and Principal Investigator List
Newsletters
Folder: Community Engagement
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Limb-Girdle Muscular Dystrophy
Folder: Patient Education Day
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Patient Education Day Information
Patient Education Day Agenda
Patient Day Videos
Folder: Conference
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Conference Info
Conference Documentation
Conference Videos

Videos

The Neural Deficits of DM1 - Thelma Amoah
Exercise in Neuromuscular Disease - Aileen Jones, PT, DPT
Mindfulness and Acceptance and Commitment Therapy - David Rothman, PhD LCP
Development of models for preclinical testing - Chris Heier, PhD
Harbison and Kavanagh Disability Law - Sean Kavanagh, Lawyer
What to expect during your research visit CRCs Jodie and Mehreen
Closing Remarks-Amy Harper, MD
Advancing Treatment for Genetic Muscular Dystrophies - Melissa Hale, PhD
Finding Genetic Modifiers of Repeat Instability in Myotonic Dystrophy Type 1 - Alexandra Marrero Quinones
How tiny RNAs can affect DMD, BMD and other muscle disorders - Alyson Fiorillo, PhD
Welcome introduction Overview 2024 - Nicholas Johnson, MD, MSCI, FAAN
Patient Panel Facilitated - Kiera Berggren, MA CCC SLP, MS
Home Modifications - Mandy Butler, PT, DPT

Powerpoint

Welcome introduction Overview 2024 - Nicholas Johnson, MD, MSCI, FAAN
Development of models for preclinical testing - Chris Heier, PhD
Harbison and Kavanagh Disability Law - Sean Kavanagh, Lawyer
What to expect during your research visit CRCs - Jodie and Mehreen
Advancing Treatment for Genetic Muscular Dystrophies - Melissa Hale, PhD
Finding Genetic Modifiers of Repeat Instability in Myotonic Dystrophy Type 1 - Alexandra Marrero Quinones
Mindfulness and Acceptance and Commitment Therapy - David Rothman, PhD LCP
Home Modifications - Mandy Butler, PT, DPT
How tiny RNAs can affect DMD, BMD and other muscle disorders - Alyson Fiorillo, PhD
The Neural Deficits of DM1
Exercise in Neuromuscular Disease - Aileen Jones, PT, DPT
Closing Remarks-Amy Harper, MD